ASBAH
ASBAH (the Association for Spina Bifida And Hydrocephalus) is a UK registered charity[1] providing information and advice about spina bifida and hydrocephalus to individuals, families and carers.
Their services are targeted towards:
- support to parents before and around the birth of their baby, or diagnosis of the disability
- support to the child and family on educational matters
- specialised information and help on health matters
- helping young people access services to progress towards control of their lives
- responding to the needs of adults with spina bifida and/or hydrocephalus.
They do this by employing a network of advisers throughout England, Wales and Northern Ireland who deliver advice, support and advocacy services. Their staff also include specialist advisers in education, health and continence management.
ASBAH works in partnership with a network of independent affiliated local associations to share information and promote good practice, and to deliver a range of support and specialist services.
Advisory committees for medical matters and education are composed of professionals from the relevant fields who offer guidance for ASBAH’s services.
ASBAH’s work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts.
Conductor and spina bifida sufferer Jeffrey Tate, CBE, has been their president since 1989. Footballer Danny Mills is a patron.