Children's palliative care

There are an estimated 49,000 children and young people in the UK living with a life-threatening or life-limiting condition that may require palliative care services.[1]

Palliative care for children and young people is an active and total approach to care, from the point of diagnosis, throughout the child’s life, death and beyond. It embraces physical, emotional, social and spiritual elements and focuses on the enhancement of quality of life for the child or young person, and support for the whole family. It includes the management of distressing symptoms, provision of short breaks, care at the end of life and bereavement support.[2]

Palliative care can be introduced at any point throughout a child’s life; it is completely individual. Some children may require palliative care from birth, others only as their condition deteriorates. Families may also vary as to whether they wish to pursue treatments aimed to cure or significantly prolong life. In practice, palliative care should be offered from diagnosis of a life-limiting condition or recognition that curative treatment for a life-threatening condition is not an option; however, each situation is different and care should be tailored to the child.

Together for Short Lives is the UK registered charity for children’s palliative care.

Life-limiting/life-shortening conditions

Life-limiting /life-shortening conditions are those for which there is no reasonable hope of cure and from which children or young people will die. Some of these conditions cause progressive deterioration rendering the child increasingly dependent on parents and carers.[3]

Life-threatening conditions

Life-threatening conditions are those for which curative treatment may be feasible but can fail, such as cancer. Children in long-term remission or following successful curative treatment are not included.


References

  1. ↑ Fraser L K, Parslow R C, McKinney P A, Miller M, Aldridge J M, Hain R, Norman P, (2012), Life Limiting and Life-threatening conditions in children and young people in the United Kingdom; Final Report for Together for Short Lives (Leeds). Paediatrics, Volume 129, Number 4, April 2012. http://pediatrics.aappublications.org/content/129/4/e923
  2. ↑ ACT, 2009. A Guide to the Development of Children’s Palliative Care Services, 3rd Edition. Bristol: ACT.
  3. ↑ Together for Short Lives, 2013. A Core Care Pathway for Children with Life-limiting and Life-threatening Conditions, 3rd Edition. Bristol: Together for Short Lives
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