List of people with osteogenesis imperfecta

This is a list of cases of people who have osteogenesis imperfecta

Activists and speakers

• Alec Cabacungan - spokesperson for Shriners Hospitals for Children.^[1]
• Raul Krauthausen - German/Colombian activist and recipient of the Order of Merit of Germany.^[2]
• Peter Radtke - German founder of Die Deutsche Gesellschaft für Osteogenesis Imperfecta, also a philologist and actor.^[3]
• Sean Stephenson - an American therapist, self-help author and motivational speaker.^[4]

Entertainers

Actors

• Michael J. Anderson - American known for appearing in David Lynch works and for playing Samson Leonhart on the HBO series Carnivàle.^[5][6]
• Jack Binstead - British actor known for a role in the British sitcom Bad Education.^[7][8]
• Julie Fernandez - British actress best known for her role in the British The Office.^[9]
• Rick Howland - Canadian actor who is known for Lost Girl.^[10]
• Kerry Ingram - British child actress best known for her role as Shireen Baratheon in the HBO series Game of Thrones and Matilda Wormwood in Matilda the Musical'.^[11]
• Quentin Kenihan - An Australian reality TV personality who played Corpus Colossus in Mad Max: Fury Road.^[12][13]
• Tarah Lynne Schaeffer (Sesame Street)^[14]
• Nabil Shaban - A Jordanian-British actor and writer who founded Graeae Theatre Company, which promotes performers with disabilities.^[15]
• Atticus Shaffer - American who plays Brick Heck on The Middle.^[16][17][18]

Comedians

• Guillaume Bats - A French humorist.^[19]

Musicians

• Randy Guss - Drummer for Toad the Wet Sprocket^[20][21]
• Kalyn Heffernan - A Hip-hop artist and producer known for the group Wheelchair Sports Camp.^[22]
• Gaelynn Lea who has worked with Alan Sparhawk^[23] and won an NPR Music contest.^[24][25]
• Michel Petrucciani - French jazz pianist who was granted a Légion d'honneur in Paris.^[26]
• Pernille Vallentin - Danish singer who also acts.^[27]
• Sparsh Shah - Indian American singer and rapper who became an Internet sensation for his cover of Eminem's "Not Afraid" in 2016.^[28]

Journalists and writers

• Franco Bomprezzi - An Italian journalist who received the Order of Merit in 2007.^[29][30]
• Christopher Hewitt - British poet and namesake of the Christopher Hewitt Award.^[31]
• Firdaus Kanga - Parsi playwright known for Trying to Grow.^[32]
• Philippe Rahmy - French speaking poet and novelist who has received the Prix Dentan among others.^[33][34]
• Stella Young - She was an Australian comedian and journalist.^[35]

Politicians

• Nicky Chapman, Baroness Chapman - A British peer and disability rights activist.^[36]
• Theresia Haidlmayr - She had been a politician of Austria's The Greens – The Green Alternative.^[37]
• Freyja Haraldsdottir - A member of the Icelandic Constitutional Assembly of 2010.^[38][39][40]

People in Sports and Games

• Doug Herland - American Olympic bronze medalist coxswain.^[41]
• Taylor Lipsett - An American Paralympic gold and bronze medalist in sledge hockey.^[42][43]
• Bobby Nail - American bridge player in the ACBL Hall of Fame.^[44]
• Josef Neumaier - A Paralympic multiple medalist in shooting for Germany.^[45]
• Jeremy Synot - A former Australian wheelchair basketball player and current National Wheelchair Basketball League Head Coach of the RSL Queensland Spinning Bullets.^[46]
• Jordanne Whiley - A British Paralympic bronze medalist in Wheelchair tennis at the 2012 Summer Paralympics.^[47][48]

Notable as a subject

• Madge Bester - A South African woman and formerly the "world's shortest living woman."^[49][50]
• Leo Beuerman - The subject of the documentary Leo Beuerman, which was nominated for the Academy Award for Best Documentary (Short Subject).^[51]
• Lin Yü-chih - He had once been counted as the "world's shortest man."^[52][53]

Other

• Fredrick Brennan - The creator of 8chan.^[54]

Disputed

• French artist Henri de Toulouse-Lautrec.^[55] His short stature and health problems are believed to have been due to congenital factors, but he was never diagnosed with a specific disorder and recent theories suggest that he had a mild form of osteopetrosis instead.^[56]
• Viking invader of England, Ivar the Boneless: There is notable speculation about his physical condition; but objective diagnosis is not possible since his skeleton was exhumed and burnt 200 years after his death by William the Conquerer.^[57]

References

1. Retrieved 26 December 2015
2. Fellow: Raúl Krauthausen, germany.ashoka.org Retrieved 11 April 2013
3. Osteogenesis Imperfecta Federation of Europe
4. Gregory, Ted (May 5, 2009). "Osteogenesis Imperfecta: Motivational Speaker Sean Stephenson Uses His Disorder to Inspire Others". Chicago Tribune. Retrieved August 7, 2011.
5. "Cast: Michael J. Anderson". Mulholland-drive.net. Retrieved 2011-08-15.
6. Dargis, Manohla (2005-02-07). "We're Sorry". The New York Times. Retrieved 2010-05-20.
7. Surrey Comet
8. BBC article on disabled vloggers
9. "Julie Fernandez - founder of The Disability Foundation". Tdf.org.uk. Retrieved 2011-08-15.
10. Interview in Ability Magazine
11. "Schoolgirl nominated for prestigious Olivier Award". maidenhead-advertiser.co.uk. Maidenhead Advertiser. 19 March 2012. Retrieved 6 September 2012.
12. News.com.au
13. Adelaide Now
14. Williams Cook, Sally (17 January 1994). "Girl in wheelchair joins 'Sesame Street' cast". The Free Lance-Star (Fredericksburg VA). p. B6. Retrieved 16 May 2011.
15. Banks-Smith, Nancy (2003-06-13). "Short and to the point". The Guardian (London). Retrieved 2010-05-20.
16. "Meet Atticus Shaffer 2006 Football Poster Child" (PDF). The Al Malaikahan. May 2006. p. 7. Retrieved 20 May 2010.
17. "Shriners" (PDF). Docs.google.com. Retrieved 2011-08-15.
18. Heldenfels, Rich (2010-03-04). "Akron Beacon Journal". Ohio.com. Retrieved 2011-08-15.
19. Le Figaro (French)
20. "OIF Newsletter" (PDF). Docs.google.com. Retrieved 2011-08-15.
21. Ragogna, Mike (2010-06-15). "Huffington Post". Huffington Post. Retrieved 2011-08-15.
22. Huffington Post
23. Minnesota Public Television Association (pdf)
24. Duluth News Tribune
25. NPR
26. Michel Petrucciani: Victory of the Spirit, International Herald Tribune, 12 January 1999.
27. Danish OI magazine (PDF)
29. Quirinale
30. Tesina in CL
31. http://www.sfgate.com/bayarea/article/Christopher-Hewitt-disabled-gay-poet-2740088.php. Missing or empty |title= (help)
32. Dallas - Movies - Willing and able Archived September 9, 2009, at the Wayback Machine.
33. Université de Lausanne
34. CBI.gov
35. Michelle Griffin. "Lunch with Stella Young". Theage.com.au. Retrieved 2013-07-26.
36. "Sydney Morning Herald". Smh.com.au. 2009-09-10. Retrieved 2011-08-15.
37. Haidlmayr, smilerkreativ.at, retrieved 3 March 2015
38. Stuff.co.nz
39. Iceland Review
40. Morgunblaðið
41. Tone. "Rowing at Pacific Lutheran University began in 1964" (PDF). Google.com. Archived from the original (PDF) on February 12, 2006. Retrieved 2011-08-15.
42. "USA Hockey" (PDF). webcache.googleusercontent.com. Retrieved 2011-08-15.
43. Paralympics info, McKinney Courier-Gazette, 6 April 2006.
44. "Nail, G. Robert", Hall of Fame of the ACBL
45. IPC bio
46. "Breaks toughen Donna Synot and her family". Herald Sun. Retrieved 14 April 2015.
47. IPC bio
48. "Lucy Suker and Jordanne Whiley survive match point to win bronze". The Daily Telegraph. 7 September 2012.
49. Murphy, Wendy (2002). Orphan Diseases. Twenty-First Century Books. p. 78. ISBN 978-0-7613-1919-1. viewed at Google Books
50. "World's shortest man, woman campaign for disabled". CNN News Asia (Cable News Network). 3 November 1998. Retrieved 2008-12-10.
51. LJ World
52. World's shortest man, woman campaign for disabled
53. Murphy, W. (2002). Orphan Diseases: New Hope for Rare Medical Conditions. Twenty-First Century Books. ISBN 0-399-14218-5
54. Wilson, Michael (January 17, 2014). "City Newcomer Is Let Down by a Stranger, Then the Police". The New York Times. Retrieved November 10, 2014.
55. "Henri de Toulouse-Lautrec > Biography > Chronology". Toulouselautrec.free.fr. Retrieved 2011-08-15.
56. "Noble figure". The Guardian (London). 2004-11-20. Retrieved 2010-05-20.
57. The Vikings, Frank. R. Donovan, author; Sir Thomas D. Kendrick, consultant; Horizon Caravel Books, by the editors of Horizon Magazine, Fourth Edition, American Heritage Publishing Co.: New York, 1964, LCC# 64-17106, pp. 44-45; 145, 148.